Difference between revisions of "CIDR"

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The Data Repositories Affinity Group provides a forum for collaboration and facilitation of the process of building and enhancing Integrated Data Repositories (IDRs) for Biomedical Research. We define an Integrated Data Repository, ultimately, as a large-scale database containing data from the full array of systems in a biomedical enterprise -- including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more. Most data repositories begin with some mix of these data resources and continue to grow in complexity and sources over time. The purpose of an IDR is to support a wide range of activities within a biomedical research enterprise, including but not limited to hypothesis testing, cohort development, comparative effectiveness, development of quality measures, genome / phenome matching, genome-wide association studies (GWAS), and general population based studies.
 
The Data Repositories Affinity Group provides a forum for collaboration and facilitation of the process of building and enhancing Integrated Data Repositories (IDRs) for Biomedical Research. We define an Integrated Data Repository, ultimately, as a large-scale database containing data from the full array of systems in a biomedical enterprise -- including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more. Most data repositories begin with some mix of these data resources and continue to grow in complexity and sources over time. The purpose of an IDR is to support a wide range of activities within a biomedical research enterprise, including but not limited to hypothesis testing, cohort development, comparative effectiveness, development of quality measures, genome / phenome matching, genome-wide association studies (GWAS), and general population based studies.
  
Our members include institutions that are in the early stages of repository development as well as many institutions that have already built data repositories and are seeking to enhance them. We conduct monthly conference calls and maintain a listserve for group use.  For more information on how to join in the calls and listserv, visit: [https://www.ctsacentral.org/committee/informatics-0] or contact CTSA_Informatics@CTSAC4.org
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Our members include institutions that are in the early stages of repository development as well as many institutions that have already built data repositories and are seeking to enhance them. We conduct monthly conference calls and maintain a listserve for group use.  For more information on how to join in the calls and listserv, visit: [https://www.ctsacentral.org/committee/informatics-0 CTSA Central] or emailCTSA_Informatics@CTSAC4.org
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== Links to Integrated Data Repositories at Academic Medical Centers==
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[http://www.bu.edu/i2b2/ Boston University]
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Harvard University (including Beth Israel Deaconness Medical Center, Brigham and Women's Hospital, Children's Hospital Boston, Dana Farber Cancer Center, Joslin Diabetes Center, Massachusetts General Hospital)
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[https://dev.uabgrid.uab.edu/wiki/i2b2 University of Alabama at Birmingham]
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[http://www.uthouston.edu/uth-big/Projects/i2b2shib.htm University of Texas Health Sciences Center  at Houston]
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[http://www.ucdmc.ucdavis.edu/ctsc/area/informatics/cohortdiscovery/ University of California Davis]
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University of California, Irvine
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University of California, Los Angeles*
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University of California, San Diego*
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University of California San Francisco
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University of Chicago
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University of Cincinnati (including Cinncinati Children's Hospital Medical Center)
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University of Colorado Denver (including Children's Hospital Colorado)
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University of Florida
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University of Kansas Medical Center
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University of Kentucky Research Foundation
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University of Massachusetts Medical School, Worcester
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University of Michigan
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University of Pennsylvania (including Children's Hospital of Philadelphia)
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University of Pittsburgh (including their Cancer Institute)
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University of Rochester School of Medicine and Dentistry
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University of Texas Health Sciences Center at San Antonio
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University of Texas Medical Branch (Galveston)
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University of Texas Southwestern Medical Center at Dallas
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University of Utah
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University of Washington
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University of Wisconsin - Madison (including Marshfield Clinic)
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Virginia Commonwealth University
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Weill Cornell Medical College
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*For participation in UCReX SHRINE network only
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Academic Health Centers (does not include AHCs that are part of a CTSA):
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Arizona State University
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City of Hope, Los Angeles
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Georgia Health Sciences University, Augusta
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Hartford Hospital, CN
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HealthShare Montana
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Massachusets Veterans Epidemiology Research and Information Center (MAVERICK), Boston
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Nemours
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Phoenix Children's Hospital
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Regenstrief Institute
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Thomas Jefferson University
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University of Connecticut Health Center
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University of Missouri School of Medicine
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University of Tennessee Health Sciences Center
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Wake Forest University Baptist Medical Center
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HMOs:
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Group Health Cooperative
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Kaiser Permanente
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International:
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Georges Pompidou Hospital, Paris, France
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Hospital of the Free University of Brussels, Belgium
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Inserm U936, Rennes, France
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Institute for Data Technology and Informatics (IDI), NTNU, Norway
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Institute for Molecular Medicine Finland (FIMM)
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Karolinska Institute, Sweden
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Landspitali University Hospital, Reykjavik, Iceland
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Tokyo Medical and Dental University, Japan
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University of Bordeau Segalen, France
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University of Erlangen-Nuremberg, Germany
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University of Goettingen, Goettingen, Germany
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University of Leicester and Hospitals, England (Biomed. Res. Informatics Ctr. for Clin. Sci)
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University of Pavia, Pavia, Italy
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University of Seoul, Seoul, Korea
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Companies:
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Johnson and Johnson (TransMART)
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GE Healthcare Clinical Data Services
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== Integrated Data Repositories at Academic Medical Centers==
 
 
[http://informatics.kumc.edu/work/wiki/HERON HERON at the University of Kansas Medical Center]
 
[http://informatics.kumc.edu/work/wiki/HERON HERON at the University of Kansas Medical Center]
  
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== Technologies and Vendors active in the Integrated Data Repository community ==
 
== Technologies and Vendors active in the Integrated Data Repository community ==
 
[http://https://www.i2b2.org/ i2b2: Informatics for Integrating Biology & the Bedside]
 
[http://https://www.i2b2.org/ i2b2: Informatics for Integrating Biology & the Bedside]
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[https://www.i2b2.org/work/i2b2_installations.html Current list of i2b2 installations] 
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[https://open.med.harvard.edu/display/SHRINE/Concept SHRINE]
 
[https://open.med.harvard.edu/display/SHRINE/Concept SHRINE]
  
  
 
== Underlying Technology links and helpful hints ==
 
== Underlying Technology links and helpful hints ==

Revision as of 13:23, 6 July 2012

Clinical Integrated Data Repositories

This page will be used to present materials on Integrated Data Repositories used for Clinical and Translational Research. This is a public facing home for the activities of the Integrated Data Repositories Affinity Group which was started as part of the National Institutes of Health Clinical and Translational Science Awards Informatics Key Function Committee. As a result, this section is less a wikipedia page and more a space to promote cross linkages and sharing.

Group Description: The Data Repositories Affinity Group provides a forum for collaboration and facilitation of the process of building and enhancing Integrated Data Repositories (IDRs) for Biomedical Research. We define an Integrated Data Repository, ultimately, as a large-scale database containing data from the full array of systems in a biomedical enterprise -- including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more. Most data repositories begin with some mix of these data resources and continue to grow in complexity and sources over time. The purpose of an IDR is to support a wide range of activities within a biomedical research enterprise, including but not limited to hypothesis testing, cohort development, comparative effectiveness, development of quality measures, genome / phenome matching, genome-wide association studies (GWAS), and general population based studies.

Our members include institutions that are in the early stages of repository development as well as many institutions that have already built data repositories and are seeking to enhance them. We conduct monthly conference calls and maintain a listserve for group use. For more information on how to join in the calls and listserv, visit: CTSA Central or emailCTSA_Informatics@CTSAC4.org


Links to Integrated Data Repositories at Academic Medical Centers

Boston University

Harvard University (including Beth Israel Deaconness Medical Center, Brigham and Women's Hospital, Children's Hospital Boston, Dana Farber Cancer Center, Joslin Diabetes Center, Massachusetts General Hospital)

University of Alabama at Birmingham

University of Texas Health Sciences Center at Houston

University of California Davis

University of California, Irvine

University of California, Los Angeles*

University of California, San Diego*

University of California San Francisco

University of Chicago

University of Cincinnati (including Cinncinati Children's Hospital Medical Center)

University of Colorado Denver (including Children's Hospital Colorado)

University of Florida

University of Kansas Medical Center

University of Kentucky Research Foundation

University of Massachusetts Medical School, Worcester

University of Michigan

University of Pennsylvania (including Children's Hospital of Philadelphia)

University of Pittsburgh (including their Cancer Institute)

University of Rochester School of Medicine and Dentistry


University of Texas Health Sciences Center at San Antonio

University of Texas Medical Branch (Galveston)

University of Texas Southwestern Medical Center at Dallas

University of Utah

University of Washington

University of Wisconsin - Madison (including Marshfield Clinic)

Virginia Commonwealth University

Weill Cornell Medical College

  • For participation in UCReX SHRINE network only

Academic Health Centers (does not include AHCs that are part of a CTSA):

Arizona State University

City of Hope, Los Angeles

Georgia Health Sciences University, Augusta

Hartford Hospital, CN

HealthShare Montana

Massachusets Veterans Epidemiology Research and Information Center (MAVERICK), Boston

Nemours

Phoenix Children's Hospital

Regenstrief Institute

Thomas Jefferson University

University of Connecticut Health Center

University of Missouri School of Medicine

University of Tennessee Health Sciences Center

Wake Forest University Baptist Medical Center

HMOs:

Group Health Cooperative

Kaiser Permanente

International:

Georges Pompidou Hospital, Paris, France

Hospital of the Free University of Brussels, Belgium

Inserm U936, Rennes, France

Institute for Data Technology and Informatics (IDI), NTNU, Norway

Institute for Molecular Medicine Finland (FIMM)

Karolinska Institute, Sweden

Landspitali University Hospital, Reykjavik, Iceland

Tokyo Medical and Dental University, Japan

University of Bordeau Segalen, France

University of Erlangen-Nuremberg, Germany

University of Goettingen, Goettingen, Germany

University of Leicester and Hospitals, England (Biomed. Res. Informatics Ctr. for Clin. Sci)

University of Pavia, Pavia, Italy

University of Seoul, Seoul, Korea

Companies:

Johnson and Johnson (TransMART)

GE Healthcare Clinical Data Services




HERON at the University of Kansas Medical Center



Technologies and Vendors active in the Integrated Data Repository community

i2b2: Informatics for Integrating Biology & the Bedside Current list of i2b2 installations

SHRINE


Underlying Technology links and helpful hints