Difference between revisions of "CIDR"
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[http://www.michr.umich.edu/services/clinicalresearch/i2b2 University of Michigan] | [http://www.michr.umich.edu/services/clinicalresearch/i2b2 University of Michigan] | ||
| − | University of | + | [http://www.urmc.rochester.edu/ctsi/news-events/eRecord-Research-update-2.cfm University of Rochester School of Medicine and Dentistry] |
| − | University of | + | [http://www.utsouthwestern.edu/research/ut-star/doing-research/biomedical-informatics/i2b2.html University of Texas Southwestern Medical Center at Dallas] |
| − | University of | + | [http://further.utah.edu/index.xhtml University of Utah] |
| + | [http://www.bhi.washington.edu/research-by-faculty University of Washington] | ||
| + | [http://dbmi.mc.vanderbilt.edu/research/dnadatabank.html Vanderbilt University] | ||
| − | + | [http://www.cctr.vcu.edu/resources/informatics.html Virginia Commonwealth University | |
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http://www.georgiahealth.edu/itss/news/july2011/i2b2.html Georgia Health Sciences University, Augusta] | http://www.georgiahealth.edu/itss/news/july2011/i2b2.html Georgia Health Sciences University, Augusta] | ||
| − | + | [http://www.healthsharemontana.org/ACM%20SIG-HIT%20FINAL.pdf HealthShare Montana] | |
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Massachusets Veterans Epidemiology Research and Information Center (MAVERICK), Boston | Massachusets Veterans Epidemiology Research and Information Center (MAVERICK), Boston | ||
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Regenstrief Institute | Regenstrief Institute | ||
| − | Thomas Jefferson University | + | [http://jdc.jefferson.edu/kimmelccfp/15/ Thomas Jefferson University] |
University of Connecticut Health Center | University of Connecticut Health Center | ||
Revision as of 13:50, 6 July 2012
Contents
Clinical Integrated Data Repositories
This page will be used to present materials on Integrated Data Repositories used for Clinical and Translational Research. This is a public facing home for the activities of the Integrated Data Repositories Affinity Group which was started as part of the National Institutes of Health Clinical and Translational Science Awards Informatics Key Function Committee. As a result, this section is less a wikipedia page and more a space to promote cross linkages and sharing.
Group Description: The Data Repositories Affinity Group provides a forum for collaboration and facilitation of the process of building and enhancing Integrated Data Repositories (IDRs) for Biomedical Research. We define an Integrated Data Repository, ultimately, as a large-scale database containing data from the full array of systems in a biomedical enterprise -- including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more. Most data repositories begin with some mix of these data resources and continue to grow in complexity and sources over time. The purpose of an IDR is to support a wide range of activities within a biomedical research enterprise, including but not limited to hypothesis testing, cohort development, comparative effectiveness, development of quality measures, genome / phenome matching, genome-wide association studies (GWAS), and general population based studies.
Our members include institutions that are in the early stages of repository development as well as many institutions that have already built data repositories and are seeking to enhance them. We conduct monthly conference calls and maintain a listserve for group use. For more information on how to join in the calls and listserv, visit: CTSA Central or emailCTSA_Informatics@CTSAC4.org
Links to Integrated Data Repositories at Academic Medical Centers
Harvard University (including Beth Israel Deaconness Medical Center, Brigham and Women's Hospital, Children's Hospital Boston, Dana Farber Cancer Center, Joslin Diabetes Center, Massachusetts General Hospital)
University of Alabama at Birmingham
University of Texas Health Sciences Center at Houston
University of California Davis
University of California San Francisco
University of Cincinnati (including Cinncinati Children's Hospital Medical Center)
HERON at the University of Kansas Medical Center
University of Kentucky Research Foundation
University of Massachusetts Medical School, Worcester
University of Rochester School of Medicine and Dentistry
University of Texas Southwestern Medical Center at Dallas
[http://www.cctr.vcu.edu/resources/informatics.html Virginia Commonwealth University
http://www.georgiahealth.edu/itss/news/july2011/i2b2.html Georgia Health Sciences University, Augusta]
Massachusets Veterans Epidemiology Research and Information Center (MAVERICK), Boston
Nemours
Phoenix Children's Hospital
Regenstrief Institute
University of Connecticut Health Center
University of Missouri School of Medicine
University of Tennessee Health Sciences Center
Wake Forest University Baptist Medical Center
HMOs:
Group Health Cooperative
Kaiser Permanente
International:
Georges Pompidou Hospital, Paris, France
Hospital of the Free University of Brussels, Belgium
Inserm U936, Rennes, France
Institute for Data Technology and Informatics (IDI), NTNU, Norway
Institute for Molecular Medicine Finland (FIMM)
Karolinska Institute, Sweden
Landspitali University Hospital, Reykjavik, Iceland
Tokyo Medical and Dental University, Japan
University of Bordeau Segalen, France
University of Erlangen-Nuremberg, Germany
University of Goettingen, Goettingen, Germany
University of Leicester and Hospitals, England (Biomed. Res. Informatics Ctr. for Clin. Sci)
University of Pavia, Pavia, Italy
University of Seoul, Seoul, Korea
Companies:
Johnson and Johnson (TransMART)
GE Healthcare Clinical Data Services
Technologies and Vendors active in the Integrated Data Repository community
i2b2: Informatics for Integrating Biology & the Bedside Current list of i2b2 installations
