CIDR

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Clinical Integrated Data Repositories

This page will be used to present materials on Integrated Data Repositories used for Clinical and Translational Research. This is a public facing home for the activities of the Integrated Data Repositories Affinity Group which was started as part of the National Institutes of Health Clinical and Translational Science Awards Informatics Key Function Committee. As a result, this section is less a wikipedia page and more a space to promote cross linkages and sharing.

Group Description: The Data Repositories Affinity Group provides a forum for collaboration and facilitation of the process of building and enhancing Integrated Data Repositories (IDRs) for Biomedical Research. We define an Integrated Data Repository, ultimately, as a large-scale database containing data from the full array of systems in a biomedical enterprise -- including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more. Most data repositories begin with some mix of these data resources and continue to grow in complexity and sources over time. The purpose of an IDR is to support a wide range of activities within a biomedical research enterprise, including but not limited to hypothesis testing, cohort development, comparative effectiveness, development of quality measures, genome / phenome matching, genome-wide association studies (GWAS), and general population based studies.

Our members include institutions that are in the early stages of repository development as well as many institutions that have already built data repositories and are seeking to enhance them. We conduct monthly conference calls and maintain a listserver for group use.


Integrated Data Repositories at Academic Medical Centers

HERON at the University of Kansas Medical Center



Technologies and Vendors active in the Integrated Data Repository community

i2b2: Informatics for Integrating Biology & the Bedside


Underlying Technology links and helpful hints