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| − | Personal Health Records can take different forms, and most make the assumption that the user’s data is to remain private. At the same time, society’s embrace of the use of social media and their willingness to share information can be a powerful tool in regards to issues such as patient empowerment and knowledge. The concept of PHR 2.0, as postulated by Gunther Eysenbach, is grounded in the belief that users freely share and have a desire to share pertinent data with other users. This concept can best be described as a Personal Health Record that has certain sections which are opened up for a controlled set of users or the public as a whole to see. That data can then be combined and shared with a tethered EHR. In the sharing of certain data by patients and users, there is an enhanced ability to learn and thus be empowered. Eysenbach feels this is a disruptive concept and is not without a large measure of risk.
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| − | A potential example of the PHR 2.0 concept is PatientsLikeMe.com. PatientsLikeMe was created as an attempt to find a cure for amyotrophic lateral sclerosis and was based on the idea that if patients are allowed to share their data with each other, better approaches to treatment could be achieved. PatientsLikeMe has grown to include over 37,000 members covering 16 different diseases. PatientsLikeMe has partnered with a company called 23andMe, Inc. to create a "genetics search engine" for the ALS community. PatientsLikeMe is the largest database of ALS patients to date. This will allow patients with ALS to share genetic information and use it to find others. A data intensive social network such as this can be incorporated into Eysenbach’s concept of the PHR 2.0.
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| − | References:
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| − | Eysenbach, Gunther. Google Health starts pilot test at Cleveland Clinic - and my reflections on Personal Health Records 2.0 (PHR 2.0). Gunther Eysenbach Random Rants Blog. 2008-02-21. URL:http://gunther-eysenbach.blogspot.com.
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| − | http://www.patientslikeme.com/
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| − | Eysenbach, Gunther. Track Keynote Presentation: From Patient Needs to personal Health Applications; AMIA Spring Conference, May 29th-31st, 2008, Phoenix,AZ
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| − | Submitted by Nathaniel Tate Gilchrist
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| − | [[Category:BMI512-W-10]]
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