Difference between revisions of "De-Identified Patient Data"

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'''De-identified patient data''' is [[Protected Health Information (PHI)|patient data]] that has been removed of important identifiers such as birth date, gender, address, and age. De-identified patient data is often used for research.
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'''De-identified patient data''' is [[Protected Health Information (PHI)|patient data]] that has been removed of important identifiers such as birth date, gender, address, and age.  
  
 
== Introduction ==
 
== Introduction ==
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There are 19 identifiers that are protected by the [[Health_Insurance_Portability_and_Accountability_Act_(HIPAA)#The_Privacy_Rule|Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule]].
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# name
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# address
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# dates directly related to the individual
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# all ages over 8#
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# telephone number
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# fax number
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# email address
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# Social Security number
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# Medical Record number
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# Health Plan number
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# Account numbers
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# Certificate or License numbers
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# Vehicle Identification numbers
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# Device Identification numbers
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# Universal Resource Locators
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# Internet protocol Address
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# Biometric identifiers
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# full face photographs and images
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# any other unique identifying number, characteristic or code
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HIPAA allows the use of such de-identified data without requiring special authorization, and its use or disclosure without restrictions
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De-identified patient data is often used for research.
  
 
Information is de-identified when it is not possible to 'reasonable ascertain' the identity of a person from that data.  
 
Information is de-identified when it is not possible to 'reasonable ascertain' the identity of a person from that data.  
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# State-of-the-art Anonymization of Medical Records Using an Iterative Machine Learning Framework; György Szarvas, Richárd Farkas, Róbert Busa-Fekete b J Am Med Inform Assoc. 2007 Sep–Oct; 14(5): 574–580.
 
# State-of-the-art Anonymization of Medical Records Using an Iterative Machine Learning Framework; György Szarvas, Richárd Farkas, Róbert Busa-Fekete b J Am Med Inform Assoc. 2007 Sep–Oct; 14(5): 574–580.
  
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'''De-identified patient data''', according to the [[Health_Insurance_Portability_and_Accountability_Act_(HIPAA)#The_Privacy_Rule|Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule]] , refers to the patient data set following the removal of all HIPAA specified patient identifiers from it. There are 19 identifiers that make up a patient’s protected information, and include the individual’s name, address, dates directly related to the individual, all ages over 89, telephone number, fax number, email address, Social Security number, Medical Record number, Health Plan number, Account numbers, Certificate or License numbers, Vehicle Identification numbers, Device Identification numbers, Universal Resource Locators, Internet protocol Address, Biometric identifiers, full face photographs and images, and any other unique identifying number, characteristic or code. HIPAA allows the use of such de-identified data without requiring special authorization, and its use or disclosure without restrictions.
 
  
 
== Reference ==
 
== Reference ==
  
 
Friedlin, F. J., McDonald, C. J. A Software Tool for Removing Patient Identifying Information from Clinical Documents. (2008) JAMIA, 15 (5); 601 – 610. PMCID: PMC2528047
 
Friedlin, F. J., McDonald, C. J. A Software Tool for Removing Patient Identifying Information from Clinical Documents. (2008) JAMIA, 15 (5); 601 – 610. PMCID: PMC2528047

Revision as of 18:21, 7 October 2011

De-identified patient data is patient data that has been removed of important identifiers such as birth date, gender, address, and age.

Introduction

There are 19 identifiers that are protected by the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule.

  1. name
  2. address
  3. dates directly related to the individual
  4. all ages over 8#
  5. telephone number
  6. fax number
  7. email address
  8. Social Security number
  9. Medical Record number
  10. Health Plan number
  11. Account numbers
  12. Certificate or License numbers
  13. Vehicle Identification numbers
  14. Device Identification numbers
  15. Universal Resource Locators
  16. Internet protocol Address
  17. Biometric identifiers
  18. full face photographs and images
  19. any other unique identifying number, characteristic or code

HIPAA allows the use of such de-identified data without requiring special authorization, and its use or disclosure without restrictions

De-identified patient data is often used for research.

Information is de-identified when it is not possible to 'reasonable ascertain' the identity of a person from that data. The definition of Irreversible de-identification of data is context driven. The capacity of re-identify de-identified data may depend critically on particular resources( Intellectual, Information Technology, Access to multiple data sets).(1) Efforts are being made to automate the anonymization of health information by developing de-identifications models that can successfully remove personal health information. (2)

  1. Australian Government. Office of the Privacy Commissioner.
  2. State-of-the-art Anonymization of Medical Records Using an Iterative Machine Learning Framework; György Szarvas, Richárd Farkas, Róbert Busa-Fekete b J Am Med Inform Assoc. 2007 Sep–Oct; 14(5): 574–580.


Reference

Friedlin, F. J., McDonald, C. J. A Software Tool for Removing Patient Identifying Information from Clinical Documents. (2008) JAMIA, 15 (5); 601 – 610. PMCID: PMC2528047

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