PHR Definition

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The Markle Foundation's Connecting for Health Initiative defined the personal health record as follows:

"The Personal Health Record (PHR) is an Internet-based set of tools that allows people to access and coordinate their lifelong health information and make appropriate parts of it available to those who need it. PHRs offer an integrated and comprehensive view of health information, including information people generate themselves such as symptoms and medication use, information from doctors such as diagnoses and test results, and information from their pharmacies and insurance companies. Individuals access their PHRs via the Internet, using state-of-the-art security and privacy controls, at any time and from any location. Family members, doctors or school nurses can see portions of a PHR when necessary and emergency room staff can retrieve vital information from it in a crisis. People can use their PHR as a communications hub: to send email to doctors, transfer information to specialists, receive test results and access online self-help tools. PHR connects each of us to the incredible potential of modern health care and gives us control over our own information." [1]

In an attempt to more carefully define a personal health record, a subcommittee of the ASTM created a specification that covers the relationship between a person (consumer), organization, or custodian (or other authorized representative) and a managing (storing) organization (such as a web site or other organization). However, web-based personal (consumer) health records that are created by healthcare providers or health plans are not within the scope of this specification. Further, this specification will not address personal (consumer) health records (PCHR) that are created and managed by patients on paper records, on personal computers, or on other media offline [3].

Reference

[1] From The Markle Foundation's Connecting Healthcare in the Information Age Project: The Personal Health Working Group Final Report

[2] see also: AHIMA e-HIM Personal Health Record Work Group. "The Role of the Personal Health Record in the EHR." Journal of AHIMA 76, no.7 (July-August 2005): 64A-D.

[3] E2211-02 Standard Specification for Relationship Between a Person (Consumer) and a Supplier of an Electronic Personal (Consumer) Health Record

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